Research Reviews

The other day I decided to challenge myself by running 5k (3.2 miles), which is 1.2 miles more than my usual run. The thought of pushing myself in that way excited me, and the rain outside just inspired me to keep running. But the rain turned into a pour, and somewhere around the two-mile mark it became so much more difficult and very hard to see through my glasses. By the time I reached my last half-mile, my body was hurting and my vision was so limited that I wanted to quit

Welcome to the Research Reviews! The purpose of this column is to share with you the current research related to DID, EDS, MCAS, POTS, CSF leaks,  and other chronic illnesses — from the point of view of the non-professional. One of the unfortunate facts about medical research is that it’s not widely available to the general public without institutional access to professional journals. I have this access as a researcher myself, albeit in mathematics. But this is a problem beca

By Christopher H — October 15, 2025 It hurts my heart every time my partner gets sent to doctors who have had little experience with EDS, POTS, MCAS, and CSF leaks because more often than not, she is dismissed or treated as if she is seeking attention, as if she has concocted a slew of unlikely symptoms for some reason or another. And there are times when she is heard, but the medical complexity is so great that the doctor has no chance of seeing the forest through the tree